My story with chronic illness started in 2012 when I got Glandular Fever, and I was diagnosed with ME/CFS in July 2014. It took a lot for me to be finally diagnosed but once I had it was both a relief and a disappointment (I actually wrote a poem about how I felt directly after being diagnosed).
I’ve written 4 posts going through my journey with GF and then ME/CFS, which you can find using the links below.
What is ME/CFS?
Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) put most simply is chronic fatigue. It can affect people at any age and can come on as a result of a traumatic experience, or just as a slow development – everyone is different.
Symptoms can include fatigue (the degree can vary from person to person), muscle and joint pain – when this has been particularly bad I’ve barely been able to move and I have needed someone (usually my Mum) to come and help me to complete the simplest of tasks – even just getting out of bed can be a struggle! Another symptom is something we like to call ‘brain fog’ which as you can imagine is when your brain is so ‘foggy’ you just can’t concentrate! You can also get other symptoms such as IBS, memory problems, sensitivity to light and sound, and a lack of temperature control. There are others as well, but for me, they are the main ones.