Hello everyone! Welcome to the first post of Invisible Disabilities Week 2018. This week runs from Sunday 14th to Saturday 20th October. My plan for this week is to post every single day, talking all things invisible illness and hopefully raising a lot of awareness.
Throughout the week there will be various guests on my blog who share their experiences with invisible illness and I will be giving some insight into my own life with an invisible illness. You can also expect some tips and tricks for managing your disability!
You can see the full plan for the week below!
If you want to know more about Invisible Disabilities Week, you can check out this website for more information.
To begin this week, I am going to share a little bit about my story and also share the poem I wrote about the time I was diagnosed with ME/CFS. If you would like to read my full story with invisible illness, read the following posts!
I was diagnosed with Glandular Fever (GF) in April 2012 and then ME/CFS in July 2014. When I first got ill, I really didn’t know what was happening. I was just so tired, to the extent where I was falling asleep in lessons at school, I couldn’t stay awake on the train, to and from school and each day was a huge struggle. When I was finally diagnosed with GF it just made sense.
Over the past few years, I have experienced so many different symptoms and I have learnt so much, about myself, and others. Having an invisible illness is hard, because you look like a normal, healthy person when you’re actually really struggling. It’s hard for people to understand when they can’t see what it is you’re struggling with.
One of the reasons I started this blog was to help raise awareness for invisible illnesses. To talk about the symptoms that nobody sees or understands.
“My illness might not be visible, but I am”
This is the quote I am going to be using throughout the week – even though our illnesses might be invisible, we are not. We are able to speak up and make the invisible, visible.
I’ve written my full story in blog posts which you can find here if you’re interested!
Down This Road
This poem is dedicated to my diagnosis. It is based on how I felt just after I’d been diagnosed with ME/CFS and my Dad was driving me home. As much as it was really hard for me to write because it took me back to such a dark place, I thought I would share it with you all anyway in the hope that someone out there will understand how I feel and will find this helpful in some way.
He drove me back with a silent gaze,
While I sat beside him in a total haze.
Nothing felt right, nothing felt good,
It was all I could do not to hide in my hood.
The tears tumbled down as black smears on my face,
Nothing could change this eternal ache.
My mind was spinning like a wheel,
Not knowing how I was supposed to feel.
I soon closed my eyes, having felt so bleak,
It was then that I let myself fall into sleep.
I dreamt of dancing out in the rain.
Where my body could no longer feel the pain.
Back then it felt like my life sentence,
But it was just the start of my acceptance.
Thank you for reading my little Introduction to Invisible Disabilities Week 2018! In tomorrow’s post, I have other bloggers sharing their stories with invisible illness, so definitely come back at 5pm tomorrow!