“I don’t do it for sympathy”: Why I started my blog

A conversation with InvisiYouth’s founder, Dominique, last week reminded me of all the reasons why I started my blog, and also, why I didn’t start it. After finishing Uni, I have been desperate to get back into blogging properly and I thought this would be the perfect opportunity to share the reasons why I started my blog with you.

I don’t do it for sympathy

That’s the only thing that I don’t blog for. I never have and I never will. I didn’t start it to make all my family and friends feel sorry for me. In fact, when I first started it, I barely told anybody in my personal life about it.

It wasn’t for them.

It was for me.

For anybody who was also struggling, so they knew they weren’t alone. It was for the loved ones of others who were chronically ill who didn’t understand. For people who were completely ignorant about invisible illnesses.

When I think about sharing a personal story, I never post it straight away after writing it. This is because sometimes I decide that actually, I don’t want to share that particular part of my life. Sometimes, I’m scared about posting something so personal, so I get a friend to read it first. Sometimes, I just need time to work out whether I’m posting it for the right reasons. Giving myself that time to sit on a blog post and re-read it and tweak it a bit just gives me the opportunity to assess whether or not it’s going to help somebody else.

After posting something personal, I often get a lot of sympathetic comments or private messages asking if I’m ok and to stay strong. And I wish people knew that this isn’t necessary. That’s not to say that I don’t appreciate your kind comments, I just want you to know that I am not seeking sympathy and I do feel a bit disheartened when that is all I get when I share something. Having said that, please don’t let that stop you from sending my kind, uplifting and motivating messages as they really do mean the world to me!

Why I started my blog

I started my blog to share what it is really like to live with an invisible illness. I wanted to share the ups and downs, the highs and lows of living with ME/CFS. But, most importantly, I wanted to show that my illness does not define me. ME/CFS does not and will not control my life and I wanted to share that with others who also struggle with their health. I wanted to show that it is possible to enjoy life with a chronic illness. I want someone to read my blog and be inspired to find interests and hobbies that allow them to take a break from their health.

This brings me to the name of my blog, Living with ME. It wasn’t an accident that it is a double entendre, I wanted my blog to be about ME (/CFS)and life with an invisible and chronic illness but I didn’t want to limit myself to that topic. Living with ME allows me to talk about ME, but also, me.

I must admit that my blog has become a lot less about chronic illness, and a lot more about me. I’ve started sharing more lifestyle type posts, and to be honest, that is just how I like it. Blogging has become much more of a hobby than I ever imagined. It is no longer just a way for me to raise awareness. It is something that I genuinely enjoy and I want every part of my life to be involved.

I hope this post has given you a little insight into why I started my blog, and why I didn’t! If you would like to read my very first post, you can find it here!

Would you like me to write a post giving you some advice about writing a lifestyle or chronic illness blog?

And if you already have a blog, what made you start it?

Until next time,

Follow:

5 Comments

  1. June 18, 2018 / 5:46 pm

    Ah… the blog evolution. It’s a wonderful thing because it’s authentically you. I love your passion for makeup and beauty, because it inspires me when I am down about my own chronic illness. It gives me a little bit of light to look forward to!

    – Elizabeth

    O HAI GIRL

    • Amy Saunders
      Author
      June 18, 2018 / 7:19 pm

      Aw thank you Elizabeth! I’m so glad it inspires you! Xxx

  2. June 19, 2018 / 12:57 pm

    I started my blog about M.E because I felt so isolated and wanted to create content for people with chronic illnesses. I’m nearly at a year of blogging and it’s the best thing I’ve done for myself in a long time. I never wanted sympathy I just wanted people to not feel like an alien on planet Earth. My content varies but right now it’s about M.E/CFS but I’m open to the natural progression of what I publish. I love makeup but energy doesn’t allow it often.

    • Amy Saunders
      Author
      June 19, 2018 / 7:04 pm

      That’s amazing! I’m so glad that it has been so successful for you! Blogging is such an amazing way to feel included in a community, you can be reassured that people are going through similar things to you and you’re not on your own which helps so much with isolation and loneliness! I look forward to seeing where your blog takes you in the future xxx

  3. June 19, 2018 / 7:43 pm

    Thank you. It’s been a true blessing to be part of this community. I’ve had M.E for nearly a decade and I want to do something constructive from my bed or sofa. In a just keep swimming, Dory style of life. 🐠

Leave a Reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.