I am so sorry that I haven’t posted any of these guest posts for so long! I’ve been struggling with health and final Uni assignments, but I am back now to finish posting the final guest posts, starting with Ed’s Outside Looking In!
I’m Ed and I’m 30 years old. I live with my fiancé Jess who lives with a number of chronic illnesses.
What is your relationship with the individual who suffers with a chronic illness/es?
I’ve been in a relationship with Jess for 2 and a half years and we’ve been engaged for 10 months.
Did you know them before or after they were diagnosed?
I knew about Jess’s conditions before we met. However some of them have worsened since we’ve been together.
In your opinion, what changed in your relationship after the diagnosis / as the condition progressed?
As the conditions have progressed I have had to take on some more responsibilities, like things around the house.
Have you been able to support them with their condition?
I feel I’ve been able to support Jess by keeping up her moral during hard times, being there to listen and lending a helping hand.
Do you find anything about their condition frustrating when you are together?
I find it frustrating that she beats herself up so much about her conditions and fears that I will leave her due to them. It can be hard to hear that.
What do you find difficult to understand about their condition?
It’s hard to come to terms with certain moods and knowledge of energy levels as I’m not the one experiencing it.
Have you ever had a question you did not feel able to ask them about their condition? If so, what was it?
No, I always feel I can speak to Jess about things.
Had you heard about their conditions before meeting them / them being diagnosed?
Yes I did know about them.
What has their condition taught you about life with a chronic illness?
It’s shown me how tough life with a chronic illness is and how much support is needed
What main piece of advice would you give to someone in your position?
Patience is a virtue, always ask questions and never assume anything.
Thank you so much Ed for taking the time to answer these questions!
- The NEXT Confessions of a Spoonie will be posted by me, on Sunday!