30 Things About My Invisible Illness You May Not Know
Here’s 30 things you may not know about my Invisible Illness!
- The illness I live with is:
- I was diagnosed with it in the year:
- But I had symptoms since:
January 2014 (unless you count all the glandular fever symptoms as well which would be since April 2012)
- The biggest adjustment I’ve had to make is:
Learning how to manage my time to make sure I’m not just ill all the time!
- Most people assume:
There’s nothing wrong with me until I tell them!
- The hardest part about mornings are:
Finding the strength and motivation to get out of bed and make the most of a good day! And on a bad day it’s simply just getting up – sometimes even that is impossible!
- My favorite medical TV show is:
Don’t watch one!
- A gadget I couldn’t live without is:
My iPhone – how else am I supposed to keep connected with people when I’m ill?!
- The hardest part about nights are:
Just getting to sleep can be difficult! When I am struggling with insomnia I find it really hard to stop worrying about not sleeping. I immediately start panicking about the next day if I don’t sleep well!
- Each day I take 7 pills & vitamins.
- Regarding alternative treatments I:
Take a lot of extra vitamins and I strongly believe that homeopathy works! You can take a look at my Treatments and Remedies here!
- If I had to choose between an invisible illness or visible I would choose:
Neither – anyone with any illness is suffering and no one should have to deal with it.
- Regarding working and career:
I’m a first year at York St John University, studying English Language with the aim to become a teacher.
- People would be surprised to know:
I’m not actually boring – I do like to have fun! Sometimes my body just says no!
- The hardest thing to accept about my new reality has been:
I can’t do everything I used to and the things I’ve had to change in my life are things I will now have to stick with for good if I want to avoid going back to the beginning.
- Something I never thought I could do with my illness that I did was:
EXERCISE – I can’t say this enough, it has been the one thing that has completely changed my life and my illness. I genuinely can’t live without it now. You can read about my Fitness Journey here!
- The commercials about my illness:
I personally haven’t seen any – not a lot of people know what it is or have even heard of it.
- Something I really miss doing since I was diagnosed is:
I’ve been quite lucky in that I can do most of what I used to do, but just in massive moderation! If I had to choose one thing it would probably be horse-riding though, I find that particularly difficult now.
- It was really hard to have to give up:
Work I guess, I went through a couple of different jobs, trying to find one that would work with my illness but nothing did so I just concentrated on getting better rather than forcing myself to go to work. And I’m in a much better position because of it.
- A new hobby I have taken up since my diagnosis is:
Blogging! I love that I can talk about my illness and health/fitness journey freely and hopefully help and inspire other people too!
- If I could have one day of feeling normal again I would:
I have a lot of days where I feel ‘normal’ but it’s my new normal!
- My illness has taught me:
A lot about myself that I didn’t know – the amount of inner strength that I didn’t realise I had and confidence too I suppose!
- Want to know a secret? One thing people say that gets under my skin is:
“You couldn’t tell there was anything wrong with you!” – Well there is!
- But I love it when people:
Remind of where I was a year ago and the dark place I was in and compare to how I am now – when other people notice the difference it really reminds me how far I’ve come!
- My favorite motto, scripture, quote that gets me through tough times is:
“When you feel like quitting, think about why you started.” – I think this applies to almost anything, my illness, losing weight, my exercise, Uni – the list goes on!
- When someone is diagnosed I’d like to tell them:
It does get better so long as you allow your body and mind time to adjust. When you’re ill, don’t fight it and when you’re not ill, don’t overdo it!
- Something that has surprised me about living with an illness is:
You really find out who you’re real friends are and who actually cares about you.
- The nicest thing someone did for me when I wasn’t feeling well was:
My boyfriend bought me a huge bunch of flowers and lots of chocolate after I was diagnosed with ME/CFS – that is something I’ll never forget.
- I’m involved with Invisible Illness Week because:
Other people need to know they’re not alone and a lot of other people are going through very similar things. Also to let people know that just because you don’t see it, doesn’t mean it doesn’t exist.
- The fact that you read this list makes me feel:
Impressed – I can’t believe you actually read all of this!