30 Things About My Invisible Illness You May Not Know

Here’s 30 things you may not know about my Invisible Illness!

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  1. The illness I live with is:
    ME/CFS
  2. I was diagnosed with it in the year:
    July 2014
  3. But I had symptoms since:
    January 2014 (unless you count all the glandular fever symptoms as well which would be since April 2012)
  4. The biggest adjustment I’ve had to make is:
    Learning how to manage my time to make sure I’m not just ill all the time!
  5. Most people assume:
    There’s nothing wrong with me until I tell them!
  6. The hardest part about mornings are:
    Finding the strength and motivation to get out of bed and make the most of a good day! And on a bad day it’s simply just getting up – sometimes even that is impossible!
  7. My favorite medical TV show is:
    Don’t watch one!
  8. A gadget I couldn’t live without is:
    My iPhone – how else am I supposed to keep connected with people when I’m ill?!
  9. The hardest part about nights are:
    Just getting to sleep can be difficult! When I am struggling with insomnia I find it really hard to stop worrying about not sleeping. I immediately start panicking about the next day if I don’t sleep well!
  10. Each day I take 7 pills & vitamins.
  11. Regarding alternative treatments I:
    Take a lot of extra vitamins and I strongly believe that homeopathy works! You can take a look at my Treatments and Remedies here!
  12. If I had to choose between an invisible illness or visible I would choose:
    Neither – anyone with any illness is suffering and no one should have to deal with it.
  13. Regarding working and career:
    I’m a first year at York St John University, studying English Language with the aim to become a teacher.
  14. People would be surprised to know:
    I’m not actually boring – I do like to have fun! Sometimes my body just says no!
  15. The hardest thing to accept about my new reality has been:
    I can’t do everything I used to and the things I’ve had to change in my life are things I will now have to stick with for good if I want to avoid going back to the beginning.
  16. Something I never thought I could do with my illness that I did was:
    EXERCISE – I can’t say this enough, it has been the one thing that has completely changed my life and my illness. I genuinely can’t live without it now. You can read about my Fitness Journey here!
  17. The commercials about my illness:
    I personally haven’t seen any – not a lot of people know what it is or have even heard of it.
  18. Something I really miss doing since I was diagnosed is:
    I’ve been quite lucky in that I can do most of what I used to do, but just in massive moderation! If I had to choose one thing it would probably be horse-riding though, I find that particularly difficult now.
  19. It was really hard to have to give up:
    Work I guess, I went through a couple of different jobs, trying to find one that would work with my illness but nothing did so I just concentrated on getting better rather than forcing myself to go to work. And I’m in a much better position because of it.
  20. A new hobby I have taken up since my diagnosis is:
    Blogging! I love that I can talk about my illness and health/fitness journey freely and hopefully help and inspire other people too!
  21. If I could have one day of feeling normal again I would:
    I have a lot of days where I feel ‘normal’ but it’s my new normal!
  22. My illness has taught me:
    A lot about myself that I didn’t know – the amount of inner strength that I didn’t realise I had and confidence too I suppose!
  23. Want to know a secret? One thing people say that gets under my skin is:
    “You couldn’t tell there was anything wrong with you!” – Well there is!
  24. But I love it when people:
    Remind of where I was a year ago and the dark place I was in and compare to how I am now – when other people notice the difference it really reminds me how far I’ve come!
  25. My favorite motto, scripture, quote that gets me through tough times is:
    “When you feel like quitting, think about why you started.” – I think this applies to almost anything, my illness, losing weight, my exercise, Uni – the list goes on!
  26. When someone is diagnosed I’d like to tell them:
    It does get better so long as you allow your body and mind time to adjust. When you’re ill, don’t fight it and when you’re not ill, don’t overdo it!
  27. Something that has surprised me about living with an illness is:
    You really find out who you’re real friends are and who actually cares about you.
  28. The nicest thing someone did for me when I wasn’t feeling well was:
    My boyfriend bought me a huge bunch of flowers and lots of chocolate after I was diagnosed with ME/CFS – that is something I’ll never forget.
  29. I’m involved with Invisible Illness Week because:
    Other people need to know they’re not alone and a lot of other people are going through very similar things. Also to let people know that just because you don’t see it, doesn’t mean it doesn’t exist.
  30. The fact that you read this list makes me feel:
    Impressed – I can’t believe you actually read all of this!

 

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